Duchenne Somriures Valents is a non-profit organization that raises funds to investigate Duchenne and Becker muscular dystrophy.
The muscular dystrophies of Duchenne and Becker are childhood, hereditary, degenerative diseases that today have no cure. They affect 1 in every 4000 boys born, although they can also rarely affect girls.
The progression of the disease that weakens all the muscles of the body as children grow, makes children dependent on a wheelchair between 8 and 12 years, and that gradually be affected their lungs, heart, hands , etc…
Duchenne Somriures Valents since 2015, when it was founded, it raises funds through events and activities organized by them, such as solidarity football tournaments, craft workshops, or participating in events organized by others such as street merchants, neighborhood parties, etc…
Another source of income is the collaboration of entities that organize their own events and donate part of the benefits. As it is our case, the one of Sincronia Yoga, that of the rent of the mats for our classes of yoga, we donated them so that Duchenne Somriures Valents can continue helping to investigate the muscular dystrophy of Duchenne.
So far the fundraising carried out by Duchenne Somiures Valents has been delivered to the Hospital Sant Joan de Deu in Barcelona, to support two lines of research into the disease.
With 100,000 euros already delivered to this hospital, the association has invested in biomarker research to study the evolution of the disease, which translates into how to measure and evaluate the effectiveness or evolution of the disease through these markers and also the support to the quality of life of children and their families through psychological projects of support groups between families / children / siblings and a support project in children’s schools to prevent bullying, and achieve a better integration of these children in the schools.